9 Autism Terms You May Be Misunderstanding

How Autism Experts Change the Meaning of Ordinary Words

Young boy sitting on bed, lining up pieces of paper
Suprijono Suharjoto/Stocksy United

If you think it's tough to make sense of your child's autism, you're right. Of course, autism is a complex disorder, but that's only half the problem. The other half is created by well-meaning professionals who carefully clothe their statements about your child in terms that can (and do!) mislead parents about their child's level of challenges and abilities.

Why would a professional intentionally confuse a parent?

In most cases, they're not actively trying to be confusing. They're simply couching their diagnoses, descriptions, and recommendations in terms that they think will be gentler or, perhaps, more politically correct. The outcome, however, is that many parents can wind up misunderstanding their child's situation.

Here are nine autism terms often misunderstood:

1. 'Delays' Are Lifelong

You've probably heard the term "delay" many times when discussing your child's autism. Usually, it's included in a statement such as "your child has a developmental delay." 

We all know what a "delay" is. We've all had delays in our lives. Checks, trains, airplanes, and dinner are often delayed. And then...they arrive. And we think "better late than never."

But the term "delay," when used to describe a child with autism, doesn't mean what we think it means. Children with autism may, in fact, develop skills as they mature—but then again, they may not.

Because autism is a lifelong disorder, which involves a range of differences and challenges that don't go away, if your child does develop skills and abilities, it's almost always because he or she has learned to work around or with autistic symptoms—not because he or she simply "caught up."

What's wrong with believing that your child will "catch up" and become, in autism lingo, "indistinguishable from his typical peers?" In some cases, parents assume that their child needs nothing but time in order to "normalize." This, of course, is not the case: early and intensive therapy is critical for a youngster with autism.

In other cases, parents see that their child has challenges but believes they will certainly have outgrown their delays by the age of 21. As a result, they may do little to prepare for the needs of a disabled adult.

2. 'Exceptional' Children Are Disabled, Not Extraordinary

It feels great to hear that your autistic child is "exceptional." Until you understand what's really meant by the term.

Ninety-nine percent of the time, the term "exceptional" means "better than average" or "terrific." But when it's used to describe children with autism, it means something completely different. Exceptionality, in the case of children with special needs, means something closer to "unlike other children because of their challenges and disabilities."

It's very easy, when told your child is "exceptional," to walk around in a warm glow of pride. Unfortunately, that feeling can lead to misunderstandings between parents, therapists, and teachers—and can create problems with your child's services and outcomes.

3. 'Cognitive Challenge' Means Low IQ

Back a few decades ago, "moron" and "idiot" were technical terms describing specific levels of intelligence as measured by an IQ test.

Because the terms were so hurtful and pejorative, they were changed to the more general term "mentally retarded." Just a few years ago, "mentally retarded" was retired, for very much the same reasons.

Today, instead of referring to a child as having "low intelligence" or "mental retardation," professionals will often describe a child as being "intellectually challenged" or "cognitively delayed" or even "mentally challenged."

What do these terms mean? Any parent could be forgiven for thinking they mean "delayed, but likely to catch up soon." Some folks think they refer to challenging behavior (also known as misbehavior). But no. Just as before, they mean "performs poorly on an IQ test." Of course, not all IQ tests are appropriate for children with autism and very often children with autism turn out to have far better reasoning abilities that a typical IQ test might suggest.

4. Autistic 'Passions' Are Not What You Think They Are

The word passionate means...what? To most people in the world, it means one of two things: terrific lover or truly dedicated to something. You can be a passionate kisser, a passionate artist, or even a passionate sailor.

While some people with autism are passionate in the usual way, that's not what's meant by the term when used by autism professionals. Rather, the term passionate is used as a euphemism for perseverative, meaning unable to stop doing the same thing over and over again. Thus, a child with an "autistic passion" might feel the need to flush the toilet over and over again, watch the same video endlessly, or talk about trains to the exclusion of all other topics of conversation.

5. 'Video' or 'TV' Talk Doesn't Mean Talking About Videos or TV

When told that their child is engaging in "video talk" or "TV talk," parents may be delighted. Finally, their child is using words and even carrying on conversations about a subject that interests others! But no. "TV talk" or "video talk" doesn't mean talking about a TV show. Instead, it means talking like a TV show. Another more technical term for this is echolalia.

What is echolalia? Many children with autism (and some teens and adults as well) can talk, but instead of using their own words, they literally recite lines from favorite TV shows, movies, or videos. This can be a non-functional form of self-calming behavior (the words don't mean anything, but it feels good to keep repeating the same sounds). It can also, however, be the first steps toward using functional language, especially when a child uses a character's words to say what he has on his mind.

6. 'Scripting' Does Not Involve Reading or Writing a Script

It would be reasonable to think that "scripting," for a child with autism, might involve providing the child with a script to use in a particular social situation. Or perhaps, for a higher functioning child, WRITING a script to use in an anxiety-provoking situation. But no.

Remember reading about video or TV talk above? Scripting is just another term for the same type of memorized sequence of words which may or may not be used for communication. It's called "scripting" because the child has literally memorized a script and is reciting it.

7. 'Rituals' Have Nothing to Do With Religion

It's unusual to hear the word "ritual" at all—and when you do hear it, it's almost always in the context of religious ceremonies. Churches, synagogues, and mosques all have rituals (actions and words repeated in the same manner and in the same order every week) related to prayer, readings, music, and so forth.

So what is meant by an autistic child's "rituals?" When used in the context of autism, "rituals" are repetitive behaviors that have no particular function but which the child feels he MUST complete. Such rituals are a symptom of Obsessive Compulsive Disorder but are also fairly common among people with autism. Autistic rituals may involve lining items up in a certain order, turning lights on and off, flushing the toilet multiple times, and so forth.

8. 'Self-Stimulating Behavior' Rarely Refers to Masturbation

What could "self-stimulation" possibly mean? It sure sounds like a euphemism for "genital stimulation." And on rare occasions, an autistic child's behavior may include that. But most of the time...it doesn't.

Self-stimulating behavior—often referred to as "stimming"—is actually a term used to describe behaviors such as rocking, finger flicking, humming, or pacing. These behaviors are not functional (they are not intended to have an outcome), but they do serve a purpose. In some cases, stimming can help a person with autism to stay calm when "assaulted" by sounds, smells, or bright lights. Stimming can also be a good way to calm anxieties.

Often, therapists work toward "extinguishing self-stimulating behaviors." By doing this, however, they may be depriving the autistic person of the tools they need to stay calm. In other words, your child may wind up trading "weird" behaviors for even "weirder" emotional breakdowns.

9. 'Stereotyped Behaviors' Have Nothing to Do With Stereotypes

Stereotypes are those usually-incorrect beliefs people have about other people, based on their race, religion, gender, abilities or place of origin. Right?  A reasonable parent might assume that a stereotype related to autism might an incorrect assumption about an autistic person made on the basis of a diagnosis.

But you've no doubt figured out, when the term is used in the context of autism, it means nothing of the sort. Remember those self-stimulating behaviors described above? They are also referred to, particularly in diagnostic literature, as "stereotypy," or "stereotyped behaviors." The DSM5 (2013) list of official autism symptoms includes:

Stereotyped or repetitive motor movements, use of objects, or speech (e.g. simple motor stereotypies, lining up toys or flipping objects, echolalia, idiosyncratic phrases).

In other words, if your child is lining up toys or using TV talk, he or she is engaged in stereotyped behavior.

Making Sense of Autism-Speak

There are plenty of websites and books that list and describe terms related to autism. And when you see a technical term you're not familiar with (such as echolalia, for example) you might actually go look it up. The problem, however, is that so many of the terms used to describe autism sound familiar. How do you know what you don't know when you don't know that you don't know it?

The best way to be sure you're completely following the conversation is to ask questions whenever possible and to double check your understanding. For example, you might ask a teacher, "I hear you say that my child is engaging in TV talk. Does that mean they're talking about TV shows?" Or you might check in with a therapist to be sure that their terminology really makes sense to you.

The same advice, by the way, is important to bear in mind when you hear a teacher or therapist say things like "he's progressing," or "she's doing great!" Before assuming that you know what "great" really mean, ask "what great things did she do today?" Often, you'll find that you and your child's teachers have very different ideas about what that word means.

Continue Reading