Lung Cancer Blogs to Check Out

Journals Written by Real People With Lung Cancer

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Writing a blog about living with lung cancer. istockphoto.com

Lung cancer blogs are a window into the real world. Real people develop lung cancer. For some people, journaling their story after a diagnosis of cancer can be a wonderful release and source of support. For those who read their words, the opportunity to peer into the daily life and struggles of someone living with a similar condition provides comfort that they are not alone. What are some of these lung cancer blogs, and who are the people that devote their time to making the world a little smaller?

life and breath: outliving with lung cancer

Linnea Duff summarizes her blog very well when she says “This is a blog about life, love, laughter and well, lung cancer.” Her blog is about living, with all of its faces.

Linnea, a 50-year-old mother of three, was diagnosed more than years ago with stage 1B non-small cell lung cancer (adenocarcinoma with BAC subtype). Initially, her prognosis looked very good and she underwent a lobectomy and adjuvant chemotherapy.

Her blog takes us through her journey as her cancer spreads, she enters a clinical trial, and now, as she acknowledges she is going to die from her cancer.

One particular blog post by Linnea penetrated my heart as I sensed a wisdom that goes far beyond her years: In Summer: all things must end she speaks of embracing her own mortality, while at the same time actively engaging in the act of living. In her words: “After all, death is really just part of life.

You can’t have one without the other.”

On a lighter note, her musings are great -- for example, what do cockroaches and cancer have in common? 

Dusty’s Blog

Dusty Donaldson isn’t alone, having experienced months between her first symptoms of lung cancer and eventual diagnosis. But what she has done since then to raise awareness will likely help others who follow her.

Dusty was diagnosed in 2005 with BAC (a form of non-small cell lung cancer), nearly 8 months after her initial symptom. She was only 51 at the time.

As she shares her journey over those first months, many people will identify. The waiting. The roller coaster. But amidst the turmoil, her sense of humor had me giggling aloud. What is it like having to lie still during a PET scan when you itch in private places?

As her blog progresses she shares what she has learned, the resources available, and how we need to learn to be compassionate towards people living with lung cancer.

An entry I have bookmarked is A Word to the Wise. I am grateful to Dusty for continuing to stamp out the stigma of lung cancer today.

This blog is no longer active, but may still be helpful to read through.

The Dude is the Dad

"Big daddy," as he calls himself, is a 48-year-old, husband of 25-plus years to a roller derby champion and father of three amazing daughters.

He is battling Stage 4 Lung Cancer and journaling his journey.

In his most recent post, he writes:

"On my last blog post dated July 1st I had just received "stable" results on my most current CT Scan.
I resolved to take a deep breath and live life carefree for the rest of the summer, as I didn't have another Scan till late August, well...that is what I did, but more on the summer later.
I recently traveled to New England for a vacation with my family, while I was there I sought out the consultation of Dr Alice Shaw who is know to be one of the worlds foremost experts on ROS1 cancer drivers.  Dr Shaw and Dr. Campo carefully reviewed my chart and were quite impressed with my progress against the disease.  I couple of suggestions were made to consider for my current line of treatment and some really hopeful things discussed about my next line of treatment.
Its always reassuring to have somebody take an objective look at your case and back up what you are doing.  At this point some really big brains have reviewed my case and here is what they have said.

"Your response can be categorized as miraculous"- Dr.Keith Eaton, SCCA University of Washington

"Your response has been amazing"- Dr. Alice Shaw, Massachusetts, General.

"You have responded to your treatment exquisitely"- Dr. Meghan Campo, Massachusetts  General.

"We had to look pretty hard to find active disease on your scans" - Dr. Ross Camidge, U of Colorado.

On the heals of all of that I had my most recent CT scan on August 24th.
Results showed continued stability, and even 1mm more of reduction.
My disease resistance number is now 13.8mm compared to 70mm when I started treatment.
So I continue the current pathway, chemotherapy every 21 days and the hopes are that everything remains stable and this part of my disease management has lots of duration.
We wanna give those big brains that I visited time to find new and innovative ways to stay in front of this stuff.Sources

Morgan, N. et al. Implementing an expressive writing study in a cancer clinic. The Oncologist. 2008. 13(2):196-204.

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