Swollen Glands or Lymph Nodes With Fibromyalgia & ME/CFS

Are They Common?

A woman in pain clutches the side of her neck.
Swollen glands can be painful. Science Photo Library/Getty Images

Question:

"In your conversations with all of these people who have FMS do you ever come across swollen glands in the neck and under the jaw line? I get a very tight feeling in my neck sometimes and burning sensations. Have had bloods done but they come back as normal. Sometimes it really makes me feel unwell." ~Lin

Answer:

Lin, rest assured that you are not alone! Swollen glands are a fairly common feature of fibromyalgia (FMS), and of the similar disease chronic fatigue syndrome (ME/CFS) as well.

Typically, we associate swollen glands with acute illnesses like the flu or the common cold. They're a sign that your immune system is working to destroy some kind of pathogen in your body, such as a virus or bacteria.

It's fairly normal for swollen lymph nodes to ache, even in "normal" people, so they're especially likely to hurt those of us with FMS because of our low pain thresholds (the point at which sensation becomes painful.) Some people with ME/CFS may have lowered pain thresholds as well.

That feeling of "unwellness" that accompanies the swelling is very likely to mean that you've picked up some acute illness, or that your body is having a harder time than usual in the battle against longer-term pathogens. (Some researchers believe that these conditions, especially ME/CFS, may involve this kind of slow-burning or "smoldering" infection.)

What are Lymph Nodes?

The "glands" that people refer to are actually lymph nodes, which are little bundles of white nerve cells.

In FMS and ME/CFS (possibly more so in ME/CFS), they're often a symptom of a chronically active immune system—your body is increasing its number of white blood cells to fight off the bug, so the area gets puffed up with them.

However, especially in FMS, they may also be a consequence of what some researchers describe as thick or sluggish bodily fluids.

Lymph is a fluid that contains white blood cells and moves through your body's lymphatic system. In FMS, the lymph that would normally pass through easily seems to get backed up.  We have lymph nodes throughout the body, in these locations:

  • under the jaw & chin
  • in the groin
  • in the armpits
  • down both sides of the neck
  • on either side of the spine on the back of the neck
  • on either side of the thyroid gland in the front of the neck
  • behind the ears
  • on the back of the head

If you have swelling or pressure in the center of your neck, it could be a problem with your thyroid gland.  Be sure to have your doctor check that out right away.

Swollen lymph nodes don't require any treatment just because they're swollen. However, if they're painful, you have several options for easing the pain:

  • heat and/or ice, possibly alternating (Try different combinations to see what helps most.)
  • Ibuprofen, other NSAIDs or other pain medications.
  • manual lymph drainage (a type of massage) if it appears to be stagnant lymph.

If you suspect you have pain in one or more lymph node, keep track of how you're feeling.

Have you been sick recently or exposed to someone who was sick? Are you more tired than usual? Note any upswing or other change in symptoms and talk to your doctor about it.

If you opt to treat painful nodes with manual lymph drainage, be aware that it's a form of deep-tissue massage and the massage therapist will likely use a lot of pressure. That's not something all of us with these conditions can handle.

Clear communication about your pain levels and about the after-effects of manual lymph drainage are essential for successful treatment that doesn't exacerbate your other symptoms. Make sure you're going to a therapist who understands the unique features of these illnesses.

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