Overwhelmed by Your Disease? These MS Organizations Can Help

Use these resources for support, information, and connection with other patients

Finding trustworthy sources of information about multiple sclerosis is key to living well with the disease and being an empowered patient. Luckily, there are several longstanding organizations out there that can provide you with just that. I've put together a list of the ten most helpful in my experience. 

Some of the following organizations have local chapters, support groups, and events to help you connect with other people with MS. Other organizations are more focused on information about treatment, research, and medical news. Becoming familiar with these organizations and the resources available to you will not only educate you about MS, but also offer you hope for the future, solidarity with fellow MS sufferers, and support during your flare-ups.  

1
National Multiple Sclerosis Society

MS Suferer Debbie Purdy & Husband
MS Suferer Debbie Purdy & Husband. Dan Kitwood / Staff / Getty Images

The National Multiple Sclerosis Society is the largest and most famous of MS organizations, with chapters in every state. The MS Society joins researchers and celebrities to raise awareness about MS nationwide. Whether you are looking for a support group or trying to understanding the latest research, the MS Society can help.

2
MedlinePlus: MS Webpage

MedlinePlus is a service of the National Library of Medicine that helps the average person to understand many health conditions. MedlinePlus contains links to federal and other organizations with information on the medical aspects of a wide range of diseases and conditions. This is a good website to check for links on the latest NIH research and patient information pages.

3
National Institute of Neurological Disorders and Stroke (NIH-NINDS)

The National Institute of Neurological Disorders and Stroke (NINDS) is the NIH Institute that leads research on MS. NINDS occasionally publishes information pages for non-medical professionals that will give an overview of MS. You can also find lists of current research on MS, clinical trials and recent scientific publications.

4
Multiple Sclerosis International Federation (MSIF)

For a global perspective on MS research, news and treatment, visit the Multiple Sclerosis International Foundation's website. You will find an overview of MS, a bibliography of MS research, news about international MS events, and information about MS in other countries. The MSIF's Atlas of MS has a series of interactive maps that provide data about MS rates throughout the world.

5
National Multiple Sclerosis Foundation (MSF)

Founded in 1986, this Florida-based organization seeks to "ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs." The MSF conducts fundraising for a number of service and educational projects for people with MS.

6
Multiple Sclerosis Association of America (MSAA)

Founded in 1970, the MSAA is a national organization that provides programs and services for people affected by MS. The MSAA has regional offices and can help connect you with MS resources in your area. The organization conducts fundraising, educational and support events regularly.

7
Rocky Mountain MS Center

This for-fee informational website has one the most comprehensive information on Complementary and Alternative Medicine (CAM) and MS. For a $20 fee, a person can have access to discussion boards, information pages, and more. The Rocky Mountain MS Center is a non-profit center focused on providing information about CAM and MS. As always, check with your doctor before using any CAM therapy.

8
Consortium of Multiple Sclerosis Centers (CMSC)

This organization is committed to being "the preeminent professional organization for Multiple Sclerosis healthcare providers and researchers in North America, and a valued partner in the global MS community." Their core purpose is to "maximize the ability of MS healthcare providers to impact the care of people who are affected by MS, thus improving their quality of life." The CMSC website is a great place to learn about some of the latest developments in MS research and treatment.

9
Disability.gov

This website contains links to disability-related information from the federal government. Information on the resources available to assist individuals with disabilities, which agencies to contact and how to access benefits can be found here.

10
Social Security Administration

The Social Security Administration is responsible for assisting individuals with disabilities who cannot work. This website can help you understand the requirements for these benefits, how much the federal government can assist disabled individuals, and much more.

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